A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Monday, October 24, 2016

Sledge Hockey

Nick has been playing sledge hockey for a couple of weeks now.
Every Sunday for 2 hours he goes on the ice and learns how to play.
Every week he gets a little better. The rest of the kids just zip along the ice, but Nick is still learning to move himself.

We come out to watch nd cheer him on (and Grandma Ridding came out this week)

Katheryn likes to be right up and close to the ice watching.

This week we got to watch a game that the intermediate league played. And after the game then Nick got out on the ice for his practice.
This week Nick also got his own hockey jersey!


He isn't zooming around the ice yet, but he is getting better. I wish there was a way to get him out more, maybe we ca borrow his sledge for some public skating? Once he is better at moving himself, he can work on hockey skills.
But he does like passing the puck back and forth under his sledge.

He is so proud of himself that he is playing hockey!

Sunday, September 18, 2016

Playing Hockey!

Nick signed up for sledge hockey today.
Kyle wasn't able to be there because of car issues, and so I tried my best to get him all set up. (I have never, ever played hockey, just watched it)
He is all ready to get on the ice!

Nick had fun on the ice, he says it is easier to move on the ice then on the pavement (with sledge roller hockey, like at Easter Seals Camp)

I showed Kyle the video afterwards and he was asking me what he was wearing.
I told him I had snow pants on him, and then all of the padding and helmet that was in his hockey bag. What was the problem?

Apparently the padding is supposed to go underneath his clothes, and there was a white hockey jersey to go over everything. And he had large hockey socks to keep his legs warm.
Hmm. Well, that's now how I got him dressed.
But at least he had fun!

Friday, September 9, 2016

School Letter to student/parents

For the last 3 years I've been making pamphlets to send to school with Nick. Usually it has been to his teachers and last year I made one for the students as well. To help answer some questions and normalize the equipment Nick uses.

When I was looking over Nick's pamphlet for this year I realized that it has a bunch of information that is helpful for the teachers, but not really stuff his classmates need to know. So instead we wrote a letter, with some pictures.

Hi classmate,
My name is Nickolas, you can also call me “Nick” and I am in your class with Ms L.
I am 6 years old and in Grade 2. I love playing Avengers and Star Wars and may recruit you into a game! My favorite characters are Captain America and Darth Vader. I love playing at recess and my favorite subject is gym. I may be quiet at first, but once we get to know each other I like playing different games. I like wrestling and playing sledge hockey this summer!

I was also born with spina bifida and hydrocephalus. But that hasn’t stopped me!
When I was born I had a hole in my back. This is called spina bifida. My spine was open and the nerves in my back were damaged. These nerves can’t tell my body how to move and what I feel.

I had surgery to close the hole when I was 1 day old. Even though my back is fixed (and I have a large scar) the nerves to my legs and feet are still damaged. I can’t feel the back of my legs or the bottom of my feet very well and have weak muscles in my legs.
I also have hydrocephalus which means I have extra water (fluid) in my brain. I have a tube, called a shunt, which takes the water from my brain and puts it in my belly. You can’t see this tube, but I have a cool scar and a bump in my hair, but you can hardly see it. I also have a latex allergy, which means that I can’t be around any latex balloons or I can get sick.
You may have noticed that I use extra equipment to help me move around the school. I wear braces on my legs to support my ankles. They have Avengers on them! I also use blue Crutches, I need extra space so that I can put the crutches on the ground. I can walk and even run with my crutches. Please don’t try to squeeze around me, because I may lose my balance and fall.

I also use a red Walker that I pull behind me. Please don’t push or pull at the walker because I might fall. I can run and play at recess and gym class with my walker. I also use an orange Wheelchair that I use on class trips and on my bus. I can push myself, but if you want to help push me, please ask me first.
I have an older sister named Katheryn who is in Grade 3 at XX. I also have 2 big black dogs named Rory and Chuva. They are very friendly. My parents are named Amanda and Kyle and my mom writes a blog about spina bifida and our family.

I am excited to meet new classmates and spend the year with you!
From Nickolas and Family

Nick has the same teacher as last year, but only 2 students are the same as last year. He is in another split class, this time being the older grade.
I think it will be a good year for him!

Wednesday, September 7, 2016

First Day of School

The summer went by fast and furious!
And we did lots on our summer bucket list
And now it is time for back to school!
Nick is so nervous about going back to school. He is starting grade 2 and has the same teacher as last year. He was very excited to wear his Captain America shirt!

Katheryn, on the other hand, is very excited to go back to school. To learn, play with her friends, meet her new teacher. Katheryn got a new dress for school, but she's worn it twice already and told everyone it was her back-to-school dress

Grade 2 and 3!
How did they get so big!

The kids were very good with pictures before school starts. And I got 3 pictures in 3 shots

Wednesday, August 10, 2016

Bowling with cousins

Nothing like a spur of the moment bowling night!
The boys tried using the force to get more points

Gwenny wanted to help

And Jamie had a blocker

Great time out with the cousins!